The Children’s Tumour Foundation is the leading non-government not-for-profit organisation dedicated to raising money to fund vital research, awareness and practical support for sufferers of Neurofibromatosis (NF); a genetic disorder with no known cure.
A condition affecting 1 in 2,500 people, it causes tumours to grow on nerves throughout the body that can lead to a range of significant health issues, including blindness, cancer, bone abnormalities, deafness, learning difficulties and disfigurement. It is painful, unpredictable and progressive.
Importantly, it can happen to anyone. NF does not discriminate by gender, ethnicity, social-economic status or geographical location and 50% of sufferers have no family history of the condition. Those who do have the gene mutation will also have a 1 in 2 chance of passing it onto their children.
NF is a lifelong condition that requires ongoing monitoring and assessment through several medical specialties. We support those impacted by NF by investing in medical research, providing access to critical support services that help reduce social isolation and improve treatment options, while also educating the community.
Why do we exist? Because tumours should never be a person's normal so we will do whatever it takes, for as long as it takes until a cure can be found.