I’ve decided to challenge myself physical and mentally by doing the Great Wall of China Half Marathon in May 2018 to raise funds for Cystic Fibrosis Tasmania. This decision has not been taken lightly because of the challenge for myself in running up and down 3000 uneven steps. But this is a wonderful monument to see and is once in a life time experience.
What is Cystic Fibrosis, or CF for short?
Cystic Fibrosis is a genetic disorder and primarily affects the lungs and digestive system because of a malfunction in the exocrine system, responsible for producing saliva, sweat, tears and mucus. This also means you are consistently susceptible to further lung infections as well as limiting the ability to breathe.
Lung Failure is the major cause of death with CF.
To quote a Cystic Fibrosis suffer
"It's like sucking throw a straw, not matter how hard you try; you can't get any air into your lungs".
A CF suffer has a daily routine that includes;
Using Nebuliser twice day, and
Taking several tablets every day, in some cases up to 40, some of these tablets are not on the Prescription Benefits Scheme.
Most CF suffers also have regular hospital visits.
The life expectation for CF suffers is 40 years of age
The reason I am raising funds for Cystic Fibrosis Tasmania because of the work they do to help CF suffers, and their families.