A baby is born with Cystic Fibrosis every FOUR days. Most won't turn FORTY.
At CFNSW we’re reaching out to support families in the cystic fibrosis community.
Caron and Matt are preparing for their third Christmas with toddler Jude. Six long years of IVF including 11 unsuccessful attempts saw their dream slowly fading, until finally they were able to conceive. The joy and excitement of realising their dream was short lived. After years of waiting to become parents, finding out your newborn has a life-limiting condition hits very hard.
Their emotions were on overdrive.
“We were devastated to learn of the diagnosis and it’s absolutely heartbreaking to think of an uncertain future for our son.”
Suddenly, they had entered an unknown world full of anxiety.
“That blissful new parent feeling left that day and was replaced by a constant fear and worry. We were thrust into the role of learning to care for Jude’s condition with things such as physio, nebulisers and medication.”
They were told Jude would require an extensive treatment regime every day for the rest of his life and that his condition will be LIFE-LIMITING.
For Caron the diagnosis changed everything...
“We can’t ever forget Jude has CF as our whole day revolves around it. Simple things like going to the beach need to be timed around routine care.”
Financially CF has had a huge impact on Caron and Matt too, not only the expense of all themedication but the time needed to care for Jude. The couple have altered their work schedules to ensure that one of them can always be with Jude. This additional pressure has taken an emotional toll on them as individuals and as a couple.
PLEASE DONATE today and help us to continue to provide vital programs and support including counselling, exercise programs, equipment loans and subsidies to help make life that little bit easier. Our education programs and resources like our CFbuzz website are invaluable.
It takes a whole community to manage CF and your help will reduce the huge financial and emotional impact.
Your tax deductible donation will help us make a practical difference in the lives of many families. Thank you for your support. You can help change Jude’s future and many others just like him.